I’ve just started serving on the Patients Like Me Team of Advisors. It’s a one year term, and involves providing patient input on the Patients Like Me forums, data collection, privacy issues, other matters. We had an initial meeting in Boston where each of us was filmed for a short introductory video, which you can find here: https://www.youtube.com/watch?v=5WjvUBiKwHk&feature=youtu.be

Thank you for sharing this video and for your efforts to support ALS research. It does not surprise me that for someone who was such an important advocate for our participatory peacebuilding processes, that you are part of an initiative to ensure greater patient centricity in searching for solutions. This is both a shout out of appreciation and a fist bump to a friend and colleague who continues to inspire.
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thank you Jerry! I really appreciate your support and hope you’re doing well.
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Hi Ken, hope we can find time to connect in NC at the leadership conference.
Fred
*From:* Ken’s Caucus *Sent:* Wednesday, February 12, 2020 7:07 PM *To:* ffisher@alsagoldenwest.org *Subject:* [New post] My “Patients Like Me” Introductory Video
Ken Menkhaus posted: ” I’ve just started serving on the Patients Like Me Team of Advisors. It’s a one year term, and involves providing patient input on the Patients Like Me forums, data collection, privacy issues, other matters. We had an initial meeting in Boston where each”
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I look forward to it!
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