Once again, I am pleased to report in my bi-annual health update that I have had no disease progression since my last post in November 2022. It has now been about four years with no change in my condition, and over seven years since symptom onset. In March, I took another short trip for fieldwork to Kenya without difficulty, and I am planning two trips to Kenya and Somalia this summer. I’m still able to swim and golf. I’m increasingly hopeful I will be able to teach to full retirement age.
Karin and I are completing the construction of a new, handicap accessible home next door to our current home, and hope to move in in July. The new home is designed to accommodate a range of shifting accessibility needs I will have over time. We’re eager to move in; half of our house is already packed up. We sweated a lot of details to get the house right. I learned a lot about designing accessible homes and hope to share that with others down the road.
This summer, I am finishing up my 3 year term as a Board of Trustee member for the ALS Association. It was a rewarding and challenging experience, I learned a lot, and I got to work with some wonderful, dedicated people. I will continue to explore ways to play a role as a volunteer in ALS advocacy.
Our kids are all doing well; our youngest, Erik, will be a senior in high school next year and then will head to college. Six years ago, I wasn’t confident I’d live long enough to see him graduate.
I’ll end with a photo of me at the local municipal golf course, which now has disability-friendly golf scooters with hand brakes and a hand accelerator, and a swivel seat for easy access. Love it!
Ken's Caucus 