I’ve just started serving on the Patients Like Me Team of Advisors. It’s a one year term, and involves providing patient input on the Patients Like Me forums, data collection, privacy issues, other matters. We had an initial meeting in Boston where each of us was filmed for a short introductory video, which you can find here: https://www.youtube.com/watch?v=5WjvUBiKwHk&feature=youtu.be
A big thank you to the musical group Davidson Local — a fun collection of musically gifted Davidson faculty, students, and friends — for offering me a platform to do some ALS awareness-raising and fundraising during a break in their gig at Summit coffee last night. The crowd was great, and when we passed around the hat (well, actually an empty beer pitcher), patrons donated $512 to the NC chapter of the ALS Association. Thanks to all!