Hi friends, hope you are all doing well. This is just an update on my health. Yet again I am happy to report that I have experienced no disease progression with the ALS over the past six months. That now makes about 5 years since the last discernible change in leg muscle strength. I’m still swimming, golfing, doing fieldwork in east Africa, teaching full time, and enjoying life. I even got out on the tennis court and (carefully!) hit with my kids Erik and Kaisa last week, just didn’t try to move to balls that were beyond my reach. Our new home is wonderful to live in.
I am meeting more people living with ALS, either at conferences or via zoom, who are also “slow progression cases” — a few have lived with ALS for 20 years or more. I’m hoping to get a bunch of us to start a small project on slow progression ALS to learn lessons from the cohort. More on that soon!
Ken's Caucus 