I’ve neglected this blog! It’s been 6 months since I last posted. Some quick news:
I am happy to report that it has now been 4.5 years with no disease progression. I continue to teach, conduct research, travel (I took two trips to Africa this summer, one to Mogadishu, one to Kenya), and exercise (mainly swimming, weights, walks, and golf). I’ve gotten into better shape, lost weight and feel great. My lower legs are still weak, but I’ve been able to improve strength in other parts of my body. My breathing capacity (measured as forced vital capacity) is now back up to the lower edge of the normal range.
We finished the building of new handicap-accessible home this summer and have moved in and love it.
Though I have rotated off the ALS Association Board of Trustees, I am still serving as a volunteer on a couple of committees, and so am staying engaged on ALS care service and advocacy issues.
Along with some other people living with ALS, I’m looking into creation of a website devoted to evidence based, deliberative discussions on ALS issues for people with the disease. We feel there is need for that kind of space. Stay tuned, more on that soon!
Happy holidays to all.
Ken's Caucus 
Ken,
Really great to get this update and hear from you again. Hopefully our paths will cross again in the not too distant future: maybe Leidos will resume its Africa conferences at some point>
Belated merry Christmas, and happy new year
Bob
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